Patients & Caregivers
Whether you’re newly diagnosed or have been managing hemophilia for years, we’re here to help you navigate treatment, daily life, and emotional well-being.
Resources & Guidance
Comprehensive information to help you take control of your hemophilia journey.
Treatment Options
Learn about factor replacement therapy, gene therapy, and other modern treatments available for hemophilia management.
Managing Bleeds
Understand how to recognize, treat, and prevent bleeding episodes at home using the RICE method and factor infusion.
Treatment Schedules
Prophylactic treatment schedules help prevent bleeds before they happen. Work with your care team to find the right plan.
Safety & Prevention
Tips on safe physical activities, sports considerations, dental care, and injury prevention for people with hemophilia.
Educational Materials
Age-appropriate educational resources for children, teens, and adults living with hemophilia and their families.
Support Communities
Connect with other patients and families through local chapters, online communities, and national hemophilia organizations.
Caregiver Tips
- Learn to Infuse
Ask your hemophilia treatment center to teach you how to administer factor concentrates at home.
- Keep a Bleeding Log
Track bleeds, treatments, and symptoms to share with your healthcare team at every visit.
- Plan Ahead
Always carry a treatment kit, medical ID, and emergency contact information for your care team.
- Emotional Support
Caring for someone with a chronic condition can be challenging. Don’t hesitate to seek support for yourself.
When to Seek Emergency Care
If you or someone you care for experiences a head injury, uncontrollable bleeding, severe joint swelling, or signs of internal bleeding (such as blood in urine or black stools), seek emergency medical attention immediately.